Firstly, thank you for the emails wondering where I’ve been. February a year ago I was diagnosed with multiple embolisms in both lungs. By the time I was diagnosed the emergency room staff told me I was a walking miracle. By all counts I should have been on a ventilator with only a miracle to save my life.
My family does not have a history of blood clots. I had not recently had surgery. I had not been on any long trips, air travel.
The only cause I could come up with is the Mirena IUD. The doctors say there are no indications on file anywhere that the Mirena IUD causes blood clots or that a woman using it should watch for embolisms.
I would love to hear from others regarding their experience with the Mirena IUD. On the web I have seen only a couple of stories of women experiencing same, but none of us can prove it is the Mirena IUD.
I would also like to hear from anyone who has used the Mirena IUD and had issues with pregnancies immediately after discontinuing its use.
All the best and thank you for your support, those of you who knew what I was going through.
Dale
August 1, 2011 at 1:51 pm
I first would like to say Im sorry to hear about your situation. I am in the same boat with the mirena,I had it fine for about 2 yrs then BAM…I had a seizure. My family has absolutely no history of seizures AT ALL!!!!. the doctors say that they never heard of the mirena causing seizures but i did my own research and found a case where a family planning place and a doctor got sued. and that seizures can be caused from hormones being “messed up”. Now how I can prove that I dont know? I need to fing out!!! I need major help!!!
October 11, 2011 at 8:43 am
I just had my mirena removed yesterday because I found a blood clot in my leg last week. My friend who is a nurse asked the dr she works with and he said get the iud removed immediately. When I got to the ob gyn yesterday, the nurse said I definetly needed it taken out. But the dr felt different. She said it doesn’t cause side effects like that because it only effects the uterus. I said ok what about all of the skin problems I’ve had. She said well that is a complaint some patients have had, but no blood clots. I have never had a blood clot until now. I had the mirena for 10 months. I really hope things get back to normal! What are you taking for your blood clots? I’m only taking a daily aspirin.
November 30, 2011 at 12:01 pm
Im so sorry this happened to you. In February 2008 I was at work and felt a bit dizzy. This was very unusual for me so I went in to the doc. I was told I had a PE in one of my lungs. I had no family history and tested negative for about 17 lab tests they ran. I had cat scans and mammograms also that came up with nothing. One month before the blood clot, I had my iud removed. It was making my breasts sore and causing some nausea. I have been looking for women with the same experience for several years. I know for a fact the progesterone in the iud changed my blood etiology. 6 months later 13 days after
stopping the blood thinner I had another pulmonary embolism.
December 25, 2011 at 7:36 pm
So here it is another year and I wanted to let women know what I was up to on this issue. I kept the mirena iud in because the alternative of major blood loss and dealing with missing work or the embarrassment of soiling my clothing in public made keeping the IUD in as having more benefits…..I need to work. I am still on blood thinners. I cannot stop taking them because the next time a blood clot could occur – because I believe the Mirena IUD caused it – I may not get a warning. Marquita, your post has me really thinking hard. I was planning on taking out the IUD permanently as I neared menopause that maybe I could go through menopause and the periods would stop on their own, etc. Now, I wonder if I can do that but will end up still being on blood thinners.